Wednesday 29 February 2012

I suppose I should tell you where this all began, hmmm?  Well, when I was in elementary I'll fully admit to rocking out to Backstreet Boys, N'Sync and Britney Spears. And I still do occasionally! Truth be told, I'm really picky about my metal. But I'm finding more and more that I like, just gotta dig through a bit.

I'm going to describe to you first why I'm in the chair, because it's quite a difficult story to get through and I'm only going to really explain it once in detail. I had a brain tumor when I was very young, they actually think that it might have started growing before I was born. (but it was such a slow growing thing that it just lied undetected for such a large amount of time) My biggest symptom was a tremor that developed in my right arm, so much so that my violin lessons were hard on my hands and I started leaving it at home (on purpose) so as not to have to face my teacher who would yell at me and "tap" the back of my hand. I eventually started to switch to using my left hand to write and that's when they found out. I was in the hospital for months. Someone brought me Nightwish's "Century Child" in that time (Aha, yay Nightwish <3) and three brain surgeries later.. they managed to get a peice of it out. At a terrible cost though.. They damaged a nerve on the left side of my brain. Which of course controls the right side of your body..  They told my mom I would be a vegetable.. They told her I would die, they told her I would never talk again. Boy, they didn't know me very well. I think I did it all just to prove them wrong. In the next few months, despite the fact I knew I was dying (a rather peaceful feeling, I must admit) I was 100% okay with it. One night I complained of a headache to my mom.. Off to the emergency we went and I had grown two cysts in my brain.. The bigger one grew upwards and had split my brain just enough and the smaller one was growing towards my brain stem. A miracle indeed.  When they went in to get rid of them, the surgeon noticed that it was parted enough to get it out.. He told my mom that the chances of me living with the surgery being done with next to none.. Without it were nothing.. I would be a vegetable, I would not walk. My mom told him to go for it. Well.. They did the surgery..  At 12 years old, they got the tumor out.

I was left with lasting effects of course.  I did walk, until I was roughly 18 or so. I've had arm, leg surgeries to try to help. But ultimately the battle was lost. I can walk, it's just ultimately safer for me not to. I trip, I fall, I tire easily, I have no ankle movement, and I swing my leg way too much and will need a knee/hip replacement by the time I'm 30, for sure.. Also, the chair has allowed me to do so much more that I couldn't. Go to school, do everyday things that most people do.. Unfortunately it also is a catch 22, as you are about to see. Well, here is where my story begins, I suppose. <3 I will regail you with many tales within the next few months I'm sure!

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